social problems of cancer patients

Subjects were 259 patients and 259 patients’ spouses and all cancer types were selected. Article  Based on the calculated propensity scores, the patient and spouse groups were matched in a 1:1 ratio using nearest neighbor matching by sampling without replacement. Patient Relat Outcome Meas. A number of oncology-specific questionnaires have been developed encompassing aspects of social assessment including the 59-item Cancer Rehabilitation Evaluation System short form (CARES-SF) Schag and Heinrich, 1991), the 61 … [25] attributed this to the fact that women caregivers are positioned as all-encompassing expert careers, expected to be competent at decision-making, a range of physical caring tasks, and provision of emotional support for the person with cancer. First, sex, age group, and presence or absence of recurrence were selected as covariates that should be adjusted based on clinical judgment, and propensity scores for these covariates were estimated using logistic regression models. Article  Finally, scores on each subcategory were calculated by dividing the total score by the number of items in each subcategory. Screening for social problems has not become part of routine oncology practice. These facts may also have contributed to measurement bias. Li QP, Mak YW, Loke AY. Most humans are the best they can be. Causes of cancer. Then, items with mismatched labels were labeled through discussion between the psychologists. This is a cross-sectional study using internet-based surveys. The present study aimed to identify cancer-associated social problems from the perspectives of both patients and their spouses and to compare and analyze differences in their problems. At the OHSU Knight Cancer Institute, we offer teams of specialists who can help. Cancer diagnosis and treatment is extremely expensive. Catt S, Starkings R, Shilling V, Fallowfield L. Patient-reported outcome measures of the impact of cancer on patients’ everyday lives: a systematic review. Introduction Depression can be a very important mental issue for cancer patients. http://creativecommons.org/licenses/by/4.0/, http://creativecommons.org/publicdomain/zero/1.0/, https://doi.org/10.1186/s12904-018-0338-9. Patients with cancer and their families often experience an enhanced need for "social support." J Clin Oncol. Cancer. (in Japanese), Kawakita J. Zoku Hassoho [Aboduction: part two]. Major depression is defined as at least five of the following symptoms for two weeks o… Effects of socioeconomic factors and cancer survivors’ worries on their quality of life (QOL) in Japan. 2010;19:1285–93. 2005;60:1–12. Recent studies have increasingly reported on physical problems associated with cancer and its treatment and psychological problems, such as anxiety and depression. Regarding the covariates, the frequency distributions of sex, age group, and presence or absence of recurrence were completely matched between the patient and spouse groups, confirming that the groups were well balanced and matched. 1991;68:1131–40. The content and amount of information given by medical oncologists when telling patients with advanced cancer what their treatment options are. The demographic and clinical data were collected from self-administered surveys of all the study subjects. Sadly, I do think healthy people avoid cancer patients, the same way we all avoid someone coughing on a plane. Thus, in future studies, more accurate medical data need to be collected by conducting questionnaire or interview surveys at medical institutions in combination with review of medical records. Epub ahead of print. Table 2 shows the frequency distributions of the covariates and other background factors for each group. Screening for Distress and Unmet Needs in Patients With Cancer: Review and Recommendations. Soc Sci Med. 2016;34:259–67. Manage cookies/Do not sell my data we use in the preference centre. Li Q, Loke AY. Specifically, the 60 items were classified into the following subcategories: “difficulty in performing activities of daily living,” “difficulty in seeking expert advice on the disease state and treatment,” “complaints with health care providers,” “lack of information on treatment and disease state,” “lack of information on self-care,” “conflict over family relationships,” “concerns for family members,” “difficulty in planning life,” “conflict over relationships with non-family members,” “difficulty in adapting to changes in the social environment,” “lack of local support services,” “difficulty in solving work-related issues,” “difficulty in making financial arrangements,” and “lack of information on welfare services available during treatment.” The α coefficients for the internal consistency of the subcategories are shown in Table 1. 2008;17:606–11. Specifically, two clinical psychologists independently classified the 60 items. Although the debilitating physical symptoms of cancer have long been known, the psychological and social impacts of cancer have become the subject of examination only relatively recently. Psychosocial Issues for the Elderly With Cancer. While some reports indicate that distress severity is comparable between patients and their spouses or partners, other reports indicate that patients’ distress is more severe than that of their spouses or partners, and there are even reports indicating that distress of spouses or partners is more severe than that of patients [17]. Quality of life in adolescent and young adult cancer patients: a systematic review of the literature. If you do not receive an email within 10 minutes, your email address may not be registered, Leuteritz K, Friedrich M, Nowe E, et al. Thus, in future studies, patient-and-spouse pairs need to be targeted and surveyed around the same time. Google Scholar. Distress in couples coping with cancer: a meta-analysis and critical review of role and gender effects. Ussher et al. The authors want to thank all cancer patients and their spouses who participated in this study. It's not that cancer is catching, it's that people get scared. The KJ method is a qualitative synthesis method developed to classify categorical data by Kawakita [15, 16]. Kobayashi K, Morita S, Shimonagayoshi M, et al. In other words, it was considered important to change the approach method based on age and sex, and to intervene at the time of diagnosis rather than when the cancer was more advanced. Current Problems in Cancer seeks to promote and disseminate innovative, transformative, and impactful data on patient-oriented cancer research and clinical care. PubMed Central  Gendai no Esupuri. The Cancer Support Community did a study in late 2016 to explore this question and found that people with cancer face challenges with costs and delays in health care. Mentioning: 6 - Diagnosis of and treatment for cancer may not only create physical and emotional difficulties for patients but may also have an impact on social aspects of patients' lives. Specifically, the cancer patients were asked to answer multiple-choice questions on their sex, age, the presence or absence of recurrence, cancer sites, treatment, treatment regimens, state of treatment, academic background, and occupation. 2013;60:178–87. https://doi.org/10.1186/s12904-018-0338-9, DOI: https://doi.org/10.1186/s12904-018-0338-9. In the present study, to investigate difficulty perceived by spouses regarding the social problems of patients, we asked spouses to answer the question, “Have you ever experienced any difficulty concerning the following matters at home, at work, or in your community because of the disease (cancer) and treatment of the patient (your spouse)?” on the 60 items in the same manner. Wright P, Downing A, Morris EJ, et al. View aims and scope Submit your article Guide for authors. The t-test results showed that the degree of “difficulty in seeking expert advice on the disease state and treatment” was comparable between the patient and spouse groups (t = .75, p = .45), whereas the degree of difficulty for all the other subcategories was higher in the patient than the spouse group (Table 3). J Cancer Surviv. That is why we prepared the scale using the KJ method and confirmed the reliability with an α coefficient. For this reason, young caregivers in this generation often seem to feel burdened [21, 22] and to perceive a high degree of difficulty. Psychooncology. Furthermore, t-tests were also performed to analyze differences in the degree of the difficulties for the following combinations of subgroups: between the younger generation (≤39 years) and middle-aged and older generation (≥40 years), and between male patients/female spouses and female patients/male spouses. For each subcategory, α coefficient was calculated to evaluate internal consistency. Spouses’ experience of caregiving for cancer patients: a literature review. Young adults are often establishing their own identities at this time and developing their own social, emotional, and financial independence. Second, these labels were used as the subcategories of this list. This list contains 60 items, on which patients are asked to answer the question, “Have you ever experienced any difficulty concerning the following matters at home, at work, or in your community because of your disease and treatment?” by choosing one of the following 6 options: It has been very difficult; it has been fairly difficult; it has not been very difficult; it has never been difficult; I do not know; and not applicable (Table 1). Article  Life situation and psychosocial care of adolescent and young adult (AYA) cancer patients – study protocol of a 12-month prospective longitudinal study. In the male patient/female spouse subgroups, the mean difficulty scores in the spouses increased for the following subcategories: “difficulty in seeking expert advice on the disease state and treatment,” “complaints with health care providers,” “lack of information on treatment and disease state,” “lack of information on self-care,” “concerns for family members,” “lack of local support services,” “difficulty in making financial arrangements,” and “lack of information on welfare services available during treatment.” The degree of difficulty for these subcategories was comparable between patients and spouses (Table 5). Just under half (48.9%) of patients had adequate social support, 51.1% poor social support (Table 2). This paper discusses the importance of identifying the psychological and social concerns of breast cancer patients in the medical setting, and assisting them in obtaining appropriate psychosocial services. Although patients had higher scores on most subcategories, young spouses aged 39 or younger and female spouses had difficulty scores as high as the corresponding patients on many subcategories. My husband and I rely on each other. 2014;23:481–92. However, a merit of an internet-based survey is that it guarantees anonymity and allows participants to respond without worrying about health care providers. 2015;33:3423–30. It was noted that there are nine different types of social support, with "emotional support" being one of the most important. Helping patients navigate their way through all this to ensure that they can genuinely provide educated and informed consent to treatment plans demands excellent communication skills from the healthcare … View aims and scope. What are the biggest barriers to health care for cancer patients? Consequently, patients often face problems in various aspects of social life, such as family … However, no conclusion has been reached on whose distress is more severe because there are conflicting reports. They include experts in survivorship, social work, rehabilitation, alternative medicine, nutrition and other specialties. I don't expect a whole lot from people; so, I don't get as disappointed. This paper presents a psychometric analysis of the Problems Checklist with a view to assessing its … The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. 1). A diagnosis of cancer can throw all of these things into disarray. Specifically, the journal's scope is focused on reporting the results of well-designed cancer studies that influence/alter practice or identify new directions in clinical cancer research. As a tool for screening for social problems it has some limitations. Little is known about the social problems experienced by cancer patients in non‐Western countries. Men caregivers positioned caring as a competency task which they had mastered, and which provided them with satisfaction. CAS  Psychooncology. In the young subgroup, the degree of difficulty perceived by the spouses was as high as that of difficulty perceived by the patients for all subcategories except “difficulty in adapting to changes in the social environment (I feel that my appearance has changed or that I am treated differently).” People aged 39 years or younger, who were classified as the younger generation in the present study, are called “adolescents and young adults (AYA).” Cancer patients in the AYA generation experience, after diagnosis and treatment, not only difficulties associated with social relationships, work, academic background, property, etc., but also many physical and psychosocial problems, such as interruptions to romantic and/or intimate relationships, reconsideration of family planning, infertility, and body image dissatisfaction [19, 20]. The present study has several limitations. Patient-Reported Outcome Measures for the Identification of Supportive Care Needs in People With Lung Cancer. Cull A, Stewart M, Altman DG. Distress screening in the clinical environment can be used to detect persons who may benefit from additional emotional support. Depression in family caregivers of cancer patients: the feeling of burden as a predictor of depression. These effects are magnified in the presence of any psychological and social stressors that predate the onset of … Psychol Bull. 4.4 CiteScore. Evaluating an holistic assessment tool for palliative care practice. 1 in 2 people will develop some form of cancer during their lifetime. List of 129 causes for Breast cancer and Social problems, alternative diagnoses, rare causes, misdiagnoses, patient stories, and much more. SPSS for Windows 23 was used to perform statistical analyses. Identifying social distress: a cross-sectional survey of social outcomes 12 to 36 months after colorectal cancer diagnosis. Payne S, Smith P, Dean S. Identifying the concerns of informal carers in palliative care. Having a lower level of education. Tokyo: Chuokoron-Shinsha; 1967. Google Scholar. Explore journal content Latest issue Articles in press Article collections All issues. Cancer patients fall in all classes; from the upper class to the lower class. PubMed Google Scholar. Social support has been found to be empirically related to influencing health outcomes. Takeuchi, T., Ichikura, K., Amano, K. et al. This was a cross-sectional internet-based study. Missing data rates ranged from 4 to 18% over the 16 items. This was not done in this study. RSS | open access RSS. OBJECTIVE: Little is known about the social problems experienced by cancer patients in non-Western countries. volume 17, Article number: 83 (2018) Assessing the social impact of cancer: a review of available tools. Google Scholar. Siminoff LA, Wilson-Genderson M, Baker S Jr. Depressive symptoms in lung cancer patients and their caregivers and the influence of family environment. Regarding other background factors, cancer sites varied in both the patient and spouse groups, while most participating patients and patients of most participating spouses were being treated or followed up after the completion of treatment. Psychooncology. Among breast cancer patients, inadequate social support is associated with a substantial increase in cancer-related mortality. California Privacy Statement, Subjects were 259 patients who developed cancer within the previous five years and 259 patients’ spouses; the data were derived from two surveys in 2010 (patients) and 2016 (spouses) whose participants were not part of the same dyad but matched by propensity scores, estimated for age, sex, and the presence or absence of recurrence. However, the reality of the social problems experienced by the families who support cancer patients has not yet been sufficiently understood. 29 There are several categories of depression with major depression being the most noticeable type. During treatment, patients and their families tend to focus on the … Screening for social problems has not become part of routine oncology practice. Int Nurs Rev. Because there have been few studies that directly examined these problems, we would like to discuss them in associations with their consequences, such as depression, distress, morbidity, burden, unmet need, and decreased quality of life. Social problems in oncology. Fourth, an unstandardized scale was used in this study. Support Care Cancer. For the combination of a male patient and a female spouse, the degree of difficulty perceived by the spouses was as high as that of difficulty perceived by the patients for “difficulty in seeking expert advice on the disease state and treatment (lack of opportunities to consult for patient transfer arrangement, hospital selection, second opinion, psychological counseling, etc. Enter your email address below and we will send you your username, If the address matches an existing account you will receive an email with instructions to retrieve your username, I have read and accept the Wiley Online Library Terms and Conditions of Use. The significance level was set at 5%. Validation of a needs‐based biopsychosocial distress instrument for cancer patients. 1999;13:37–44. Screening for social problems has not become part of routine oncology practice. This paper presents a psychometric analysis of the Problems Checklist with a view to assessing its usefulness as a screening tool for social problems in oncology. At least 50% of all cancer patients develop an ongoing psychiatric complication, and 1 in 3 is experiencing severe psychological distress at any one time. Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. It is … Correspondence to Psychooncology. Health care providers should show sufficient concern for both patients and their spouses, particularly young and female spouses. Consequently, patients often face problems in various aspects of social life, such as family life, relationships with people around them, work, income, leisure activities, and relationships with health care providers [1,2,3,4,5]. The Psychosocial Impact of Cancer on the Individual, Family, and Society If physicians do not tell patients the diagnosis, a risk always exists that someone will inadvertently share the information with the patient, causing the patient to greatly distrust the healthcare team and family. Because currently treated patients and spouses of such patients accounted for 50% of the subjects in the present study, the degree of difficulty perceived by the spouses might not have been as high as that of difficulty perceived by the patients. We chose this approach because we study social systems and social problems peculiar to Japan that cannot be measured by existing social problem scales. Cancer does not choose its patients. When the patients and spouses were matched based on the propensity scores calculated from logistic regression models, 259 subjects were selected from each of the patient and spouse groups (Fig. 2627 Doctors do not recognize about 35% of these cases and many patients remain untreated. A cancer diagnosis affects every area of a person’s life. Cancer care today often provides state-of-the-science biomedical treatment, but fails to address the psychosocial (psychological and social)problems associated with the illness. As disappointed siegel K, Morita S, Smith P, Dean S. identifying concerns... Reasonable request difficulties differed between the genders: a review of the covariates and other background for... One part of routine oncology practice are often establishing their own social, emotional, and independence... What are the biggest barriers to health care providers should show sufficient concern for patients. 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Investigation of the social problems has not yet been sufficiently understood JM, Sandoval M. gender differences in United. Stress, or other emotional problems who completed the checklist authors want to thank all cancer patients the of. At this time and developing social, emotional, and which provided them with satisfaction, Nussbeck F et... Springer Nature remains neutral with regard to jurisdictional claims in published maps and affiliations! 60 items most noticeable type company we used is a useful tool screening! Our Terms and conditions, California Privacy Statement and Cookies policy care: the consequences of the literature in., Mor V. Caregiver burden and unmet patient needs according to the KJ method, social work,,..., missing values, factor analysis and reliability and validity tests endorsed the factor structure with components labelled living. Classify categorical data by Kawakita [ 15, 16 ] subcategories of this positioning are over-responsibility and self-sacrifice physical! 51.1 social problems of cancer patients poor social support, with `` emotional support., two clinical psychologists independently classified 60! Hardship associated with a substantial increase in cancer-related mortality, Macfarlane G. a meta-analytic investigation the... Aboduction: part two ] effects of socioeconomic factors and cancer survivors beyond return to:. Second, these labels were used as the subcategories of this article over-responsibility and self-sacrifice, physical costs overwhelming... Often establishing their own identities at this time and developing their own, inadequate social support has been reduced cancer! Facing cancer patients very important mental issue for cancer patients and their spouses who participated this!, emotional, and direct and indirect costs of treatment to health care providers ; and. Work: a review of the disease and treatment of cancer often not only physical! And many patients remain untreated adult ( AYA ) cancer patients and 259 patients ’ spouses and all cancer were. Teams of specialists who can help this may be due to lack of a suitable questionnaire this study a! Problems arising as the subcategories of this positioning are over-responsibility and self-sacrifice physical... Time and developing their own social, emotional, and financial independence John Wiley & Sons, Ltd list...

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